Joined May 2005
Moderator since 2008
Forum Thread
Stage 4 kidney disease no OT
August 29, 2021 at
08:45 PM
in
Question
I have stage 4 kidney disease. It was a surprise...but not really. I have been stage 3 for a long time, and ignored all of the warning signs like a dummy just thinking it would go away or get better. Nope 
I was hospitalized for 4 days recently and I guess damn near died at some point. A lot of it is a blur. I don't even really remember much about how I got there, just waking up and being really confused. It was awful.
I'm home now and feel.....fine? I guess "lived with stage three for years and never really thought about it" level of fine anyway. That is to say: itchy, twitchty, foggy headed and all of the other goofy stuff that comes with KD that you sort of get used to.
So. Stage three to stage 4/5 borderline, 4 days in hospital, pushed back to stage 4, which is where I am now. I am supposed to get my blood checked monthly and visit a specialist monthly.
But. I don't want to do it. I don't want a transplant or Dialysis if it comes to those things. I'm almost 50. Give a healthy kidney to a young person that needs it.
This post is rambeling as all and probably makes no sense. I am just trying to sort my thoughts.
Anyway. Sorry for the no OT thing. I am hoping to get feedback from any other loungers who have kidney disease of any stage, and if you have later stage, how you have been coping with it.
thanks for reading :hug
Edit: a beautiful SD friend Pm'd this to me, and I am adding it in on 10/26
One day at a time?
Mantras?
"I listen to my body and give it what it needs."
"Every cell in my body is alive and beautiful."
I was hospitalized for 4 days recently and I guess damn near died at some point. A lot of it is a blur. I don't even really remember much about how I got there, just waking up and being really confused. It was awful.
I'm home now and feel.....fine? I guess "lived with stage three for years and never really thought about it" level of fine anyway. That is to say: itchy, twitchty, foggy headed and all of the other goofy stuff that comes with KD that you sort of get used to.
So. Stage three to stage 4/5 borderline, 4 days in hospital, pushed back to stage 4, which is where I am now. I am supposed to get my blood checked monthly and visit a specialist monthly.
But. I don't want to do it. I don't want a transplant or Dialysis if it comes to those things. I'm almost 50. Give a healthy kidney to a young person that needs it.
This post is rambeling as all and probably makes no sense. I am just trying to sort my thoughts.
Anyway. Sorry for the no OT thing. I am hoping to get feedback from any other loungers who have kidney disease of any stage, and if you have later stage, how you have been coping with it.
thanks for reading :hug
Edit: a beautiful SD friend Pm'd this to me, and I am adding it in on 10/26
One day at a time?
Mantras?
"I listen to my body and give it what it needs."
"Every cell in my body is alive and beautiful."
786 Comments
Your comment cannot be blank.
Sign up for a Slickdeals account to remove this ad.
I managed to trip and fall and broke my hip and heel bone. It was the most awful pain I ever felt in my life! I was in the hospital for awhile and they set me up on dialysis. I feel a lot better since I started it. I have gained some weight and I don't have as much of the wonky brain fog that CKD brings. I actually feel sort of human again,
I hope that you all are doing well, my SD family.
I actually feel sort of human again,
I managed to trip and fall and broke my hip and heel bone. It was the most awful pain I ever felt in my life! I was in the hospital for awhile and they set me up on dialysis. I feel a lot better since I started it. I have gained some weight and I don't have as much of the wonky brain fog that CKD brings. I actually feel sort of human again,
I hope that you all are doing well, my SD family.
Miss You!!!
I managed to trip and fall and broke my hip and heel bone. It was the most awful pain I ever felt in my life! I was in the hospital for awhile and they set me up on dialysis. I feel a lot better since I started it. I have gained some weight and I don't have as much of the wonky brain fog that CKD brings. I actually feel sort of human again,
I hope that you all are doing well, my SD family.
Sign up for a Slickdeals account to remove this ad.
I managed to trip and fall and broke my hip and heel bone. It was the most awful pain I ever felt in my life! I was in the hospital for awhile and they set me up on dialysis. I feel a lot better since I started it. I have gained some weight and I don't have as much of the wonky brain fog that CKD brings. I actually feel sort of human again,
I hope that you all are doing well, my SD family.
I managed to trip and fall and broke my hip and heel bone. It was the most awful pain I ever felt in my life! I was in the hospital for awhile and they set me up on dialysis. I feel a lot better since I started it. I have gained some weight and I don't have as much of the wonky brain fog that CKD brings. I actually feel sort of human again,
I hope that you all are doing well, my SD family.
I managed to trip and fall and broke my hip and heel bone. It was the most awful pain I ever felt in my life! I was in the hospital for awhile and they set me up on dialysis. I feel a lot better since I started it. I have gained some weight and I don't have as much of the wonky brain fog that CKD brings. I actually feel sort of human again,
I hope that you all are doing well, my SD family.
miss ya my friend
Sign up for a Slickdeals account to remove this ad.