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Join "Be the Match" for FREE to be a Marrow Donor

8 88 January 7, 2012 at 10:03 AM
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This month I decided that I wanted to join "Be the Match" to be entered into the database for bone marrow donors. I knew that it was going to cost $100 in order to offset the cost of the lab costs to test my cells. However, when I went to sign up yesterday it was nice to see that the American Express Foundation has issued a grant to pay for the cost of being registered with "Be the Match" during the month of January.

Simple go to:

www.marrow.org [marrow.org]

DETAILS:
When you join the Be The Match Registry® today, you are joining to help any patient in need of a bone marrow donor. As a volunteer, you are never under any legal obligation to donate and your decision is always respected. However, a late decision not to donate can be life-threatening to a patient, so please think seriously about your commitment before deciding to join.

You can give hope to patients with blood cancers like leukemia and lymphoma, sickle cell and other life-threatening diseases. Patients especially need you if you are between the ages of 18 and 44. That's because younger donors produce more and higher-quality cells than older donors.

The American Express Foundation has provided a grant to cover the costs associated with joining the registry online for the month of January. Service to its customers and to the community has been a hallmark of American Express throughout its 160-year history. As part of its community outreach the American Express Foundation encourages good citizenship by supporting organizations that cultivate meaningful opportunities for civic engagement by its employees and members of the community, whether as volunteers, donors, voters or patrons.
About the OP
Joined Sep 2010 L1: Learner
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Last Edited by mgm91 January 7, 2012 at 06:40 PM
Please ask questions and do research PRIOR to signing up. The process does have some minimal risks, and depending on the patients needs, could possibly involve some pain in the donation process. The simple truth is, you cannot know what exactly they will need of you because they cannot know ahead of time who you will match and what condition is causing their need for donor marrow. There are people who have been on the marrow donation list for DECADES and have never had a call. You just can't know ahead of time how things are going to work out or what will be needed.

It's better and considerably more charitable to think about this and know exactly what you are signing up for, than to just click and go. It costs a fair amount to process these, but even more important is the patients life and well being.

Marrow donation requires a VERY close match. A patient who gets marrow that doesn't match closely enough can suffer horrendous setbacks, and death is even a very real possibility. To be told there is a good match for you, only to have a donor back out because of fear or having not thought things through is heartbreaking on a level I hope no one ever has to face first hand. I have been there.

Address your concerns please. There is no one working in or with the organ and tissue donation arena that will be anything less than gracious and patient with any questions or worries you have.

I have been involved in kidney donation advocacy for a while now, but decided to join the marrow registry when a friends 4 year old wasted away in under a year from leukemia. The need for marrow donors is even more desperate than the need for blood, because the match has to be much much more exact.

Be the match is VERY good about answering question and giving information and I can also help direct you to info if you need it.

orphicdragon on the forums
[email protected] if you would prefer to email

Donation is one of the coolest things you can do, and if you know what you are getting into and what it involves you won't regret your choice.

Additional message from mgm91:
Hi all. I'm an intern donor recruiter with Be The Match and have experience with answering questions and registering donors. Please feel free to PM me any questions also. Thanks for signing up!
Myths & Facts about Bone Marrow Donation [marrow.org]

Donation FAQs [marrow.org]



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Joined Aug 2011
L1: Learner
> bubble2 3 Posts
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deeluce
01-07-2012 at 11:20 AM.
01-07-2012 at 11:20 AM.
Thanks so much for posting this. I've been wanting to be a donor but never really looked into it. This gave me the push I needed. I'm officially registered. Hopefully your post will have saved someone's life! Embarrassment)
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Joined Dec 2011
L2: Beginner
> bubble2 96 Posts
36 Reputation
meggs
01-07-2012 at 11:53 AM.
01-07-2012 at 11:53 AM.
Long-Term Effects
Long-term side effects are rare but possible when donating bone marrow. About one out of 100 donors experiences damage to a bone, muscle or nerve in the hip area.



Read more: Side Effects of Donating Bone Marrow | eHow.com http://www.ehow.com/about_5326346...z1inu9TF27

Unsure
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Joined Jun 2008
L1: Learner
> bubble2 7 Posts
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bosspup
01-07-2012 at 12:07 PM.
01-07-2012 at 12:07 PM.
Quote from meggs :
Long-Term Effects
Long-term side effects are rare but possible when donating bone marrow. About one out of 100 donors experiences damage to a bone, muscle or nerve in the hip area.



Read more: Side Effects of Donating Bone Marrow | eHow.com http://www.ehow.com/about_5326346...z1inu9TF27

Unsure
This is for the aspiration technique, which is the old manner of extracting bone marrow cells. The modern approach is known as apheresis, where you take a drug in order to stimulate production of immature blood cells, which then flow into the bloodstream. Then, in a technique that is not much different than donating plasma, the immature blood cells are filtered out while the rest of the blood is returned to your body. The only side effect is that in some case there are some slight flu symptoms, but it simply is nothing like the old technique.
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Joined Nov 2008
L3: Novice
> bubble2 288 Posts
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spitcool
01-07-2012 at 12:07 PM.
01-07-2012 at 12:07 PM.
Small amount of "damage" is acceptable to save a life...
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Joined Jun 2007
L5: Journeyman
> bubble2 794 Posts
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mojoe_24
01-07-2012 at 12:09 PM.
01-07-2012 at 12:09 PM.
Too fat to join. Time to lose weight.
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Joined Jun 2008
L1: Learner
> bubble2 7 Posts
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bosspup
01-07-2012 at 12:11 PM.
01-07-2012 at 12:11 PM.
Quote from bosspup :
This is for the aspiration technique, which is the old manner of extracting bone marrow cells. The modern approach is known as apheresis, where you take a drug in order to stimulate production of immature blood cells, which then flow into the bloodstream. Then, in a technique that is not much different than donating plasma, the immature blood cells are filtered out while the rest of the blood is returned to your body. The only side effect is that in some case there are some slight flu symptoms, but it simply is nothing like the old technique.
Oh, one other thing. The apheresis technique is by far the dominant method for extracting bone marrow cells from a donor. I believe about 70% of donations are currently made using that method and it is going up. For more information about the shortage of bone marrow donors, particularly for those people of mixed races, check out http://ij.org/about/2900
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Joined Oct 2009
L3: Novice
> bubble2 156 Posts
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danchay
01-07-2012 at 12:12 PM.
01-07-2012 at 12:12 PM.
Quote from meggs :
Long-Term Effects
Long-term side effects are rare but possible when donating bone marrow. About one out of 100 donors experiences damage to a bone, muscle or nerve in the hip area.



Read more: Side Effects of Donating Bone Marrow | eHow.com http://www.ehow.com/about_5326346...z1inu9TF27

Unsure
This makes me wish there was a way to give negative feedback. At least do real research on modern medicine before posting something as ignorant as this. You have a better chance of being seriously injured choking on a cup of water than being seriously injured donating marrow.
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Joined Feb 2005
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> bubble2 6,320 Posts
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alchemista
01-07-2012 at 12:13 PM.
01-07-2012 at 12:13 PM.
Do you get any medical information on yourself when you join? For example, some of your own screenings / marrow types / blood type / etc? I don't see anything on the website that says that.
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Joined Jan 2012
L7: Teacher
> bubble2 2,390 Posts
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afrugalfather
01-07-2012 at 12:14 PM.
01-07-2012 at 12:14 PM.
Quote from bosspup :
This is for the aspiration technique, which is the old manner of extracting bone marrow cells. The modern approach is known as apheresis, where you take a drug in order to stimulate production of immature blood cells, which then flow into the bloodstream. Then, in a technique that is not much different than donating plasma, the immature blood cells are filtered out while the rest of the blood is returned to your body. The only side effect is that in some case there are some slight flu symptoms, but it simply is nothing like the old technique.
Also this is only the bridge you cross if you happen to be a match with a person in need. To get into the database only requires a painless non evasive dab of a q tip in the mouth. Do it people! Especially if you a minority or of mixed race. There are not enough of us in the db
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Joined Nov 2008
L6: Expert
> bubble2 1,057 Posts
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KyletheTiger
01-07-2012 at 12:16 PM.
01-07-2012 at 12:16 PM.
I'm shocked it used to cost $100 to become a donor.
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Joined Jan 2006
L3: Novice
> bubble2 153 Posts
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blacknight
01-07-2012 at 12:19 PM.
01-07-2012 at 12:19 PM.
So cool, thanks for posting this. If it wasn't for marrow donors, my dad wouldn't have even had a chance to fight the cancer that was killing him.

He ultimately passed away from complications after his transplant, but due to a donor he did in fact beat the cancer he had. Thanks to all those who are willing to take a chance and put themselves on the list.
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Joined Jan 2006
L3: Novice
> bubble2 153 Posts
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blacknight
01-07-2012 at 12:21 PM.
01-07-2012 at 12:21 PM.
Quote from KyleMittskus :
I'm shocked it used to cost $100 to become a donor.
The $100 was to cover the cost of the lab tests, and it also helps to find those who are serious about saving a life. Nothing worse than finding a donor that matches and getting to the end only to have them back out.

When I registered the $100 was suggested, not required.
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Joined Aug 2004
L7: Teacher
> bubble2 2,375 Posts
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cookiemonster
01-07-2012 at 12:26 PM.
01-07-2012 at 12:26 PM.
Quote from alchemista :
Do you get any medical information on yourself when you join? For example, some of your own screenings / marrow types / blood type / etc? I don't see anything on the website that says that.
I've been a member for many years. As I recall, they don't give you information about yourself. It's just really a screening.

A few years after I joined, I was notified that I was a preliminary match, and they wanted to do more testing to see if I was indeed a match. I went in & they took (I think) 6 red tops of blood. If I turned out to be a match, they would let me know that they wanted my marrow, but it never came to that.

Oh, and I didn't pay to join. I had no idea anyone ever paid to join.
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