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#1
01-07-2012, 10:03 AM
 Join "Be the Match" for FREE to be a Marrow Donor Simple go to: www.marrow.org [marrow.org] DETAILS: When you join the Be The Match Registry® today, you are joining to help any patient in need of a bone marrow donor. As a volunteer, you are never under any legal obligation to donate and your decision is always respected. However, a late decision not to donate can be life-threatening to a patient, so please think seriously about your commitment before deciding to join. You can give hope to patients with blood cancers like leukemia and lymphoma, sickle cell and other life-threatening diseases. Patients especially need you if you are between the ages of 18 and 44. That's because younger donors produce more and higher-quality cells than older donors. The American Express Foundation has provided a grant to cover the costs associated with joining the registry online for the month of January. Service to its customers and to the community has been a hallmark of American Express throughout its 160-year history. As part of its community outreach the American Express Foundation encourages good citizenship by supporting organizations that cultivate meaningful opportunities for civic engagement by its employees and members of the community, whether as volunteers, donors, voters or patrons. |
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Multi-Quote| 01-07-2012, 10:03 AM | |
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Wiki Community Board
This can and should be used by you to post updated deal information.
Be sure to read this because it may contain answers to your questions!
This can and should be used by you to post updated deal information.
Be sure to read this because it may contain answers to your questions!
Please ask questions and do research PRIOR to signing up. The process does have some minimal risks, and depending on the patients needs, could possibly involve some pain in the donation process. The simple truth is, you cannot know what exactly they will need of you because they cannot know ahead of time who you will match and what condition is causing their need for donor marrow. There are people who have been on the marrow donation list for DECADES and have never had a call. You just can't know ahead of time how things are going to work out or what will be needed.
It's better and considerably more charitable to think about this and know exactly what you are signing up for, than to just click and go. It costs a fair amount to process these, but even more important is the patients life and well being.
Marrow donation requires a VERY close match. A patient who gets marrow that doesn't match closely enough can suffer horrendous setbacks, and death is even a very real possibility. To be told there is a good match for you, only to have a donor back out because of fear or having not thought things through is heartbreaking on a level I hope no one ever has to face first hand. I have been there.
Address your concerns please. There is no one working in or with the organ and tissue donation arena that will be anything less than gracious and patient with any questions or worries you have.
I have been involved in kidney donation advocacy for a while now, but decided to join the marrow registry when a friends 4 year old wasted away in under a year from leukemia. The need for marrow donors is even more desperate than the need for blood, because the match has to be much much more exact.
Be the match is VERY good about answering question and giving information and I can also help direct you to info if you need it.
orphicdragon on the forums
willingdonors@gmail.com if you would prefer to email
Donation is one of the coolest things you can do, and if you know what you are getting into and what it involves you won't regret your choice.
Additional message from mgm91:
Hi all. I'm an intern donor recruiter with Be The Match and have experience with answering questions and registering donors. Please feel free to PM me any questions also. Thanks for signing up!
Myths & Facts about Bone Marrow Donation [marrow.org]
Donation FAQs [marrow.org]
This post can be edited by most users to provide up-to-date information about developments of this thread based on user responses, and user findings. Feel free to add, change or remove information shown here as it becomes available. This includes new coupons, rebates, ideas, thread summary, and similar items.
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It's better and considerably more charitable to think about this and know exactly what you are signing up for, than to just click and go. It costs a fair amount to process these, but even more important is the patients life and well being.
Marrow donation requires a VERY close match. A patient who gets marrow that doesn't match closely enough can suffer horrendous setbacks, and death is even a very real possibility. To be told there is a good match for you, only to have a donor back out because of fear or having not thought things through is heartbreaking on a level I hope no one ever has to face first hand. I have been there.
Address your concerns please. There is no one working in or with the organ and tissue donation arena that will be anything less than gracious and patient with any questions or worries you have.
I have been involved in kidney donation advocacy for a while now, but decided to join the marrow registry when a friends 4 year old wasted away in under a year from leukemia. The need for marrow donors is even more desperate than the need for blood, because the match has to be much much more exact.
Be the match is VERY good about answering question and giving information and I can also help direct you to info if you need it.
orphicdragon on the forums
willingdonors@gmail.com if you would prefer to email
Donation is one of the coolest things you can do, and if you know what you are getting into and what it involves you won't regret your choice.
Additional message from mgm91:
Hi all. I'm an intern donor recruiter with Be The Match and have experience with answering questions and registering donors. Please feel free to PM me any questions also. Thanks for signing up!
Myths & Facts about Bone Marrow Donation [marrow.org]
Donation FAQs [marrow.org]
This post can be edited by most users to provide up-to-date information about developments of this thread based on user responses, and user findings. Feel free to add, change or remove information shown here as it becomes available. This includes new coupons, rebates, ideas, thread summary, and similar items.
Once a Thread Wiki is added to a thread, "Create Wiki" button will disappear. If you would like to learn more about Thread Wiki feature, click here.
Last edited by mgm91; 01-07-2012 at 06:40 PM..
#3
01-07-2012, 11:20 AM
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Thanks so much for posting this. I've been wanting to be a donor but never really looked into it. This gave me the push I needed. I'm officially registered. Hopefully your post will have saved someone's life!
 )
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#4
01-07-2012, 11:53 AM
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Long-Term Effects
Long-term side effects are rare but possible when donating bone marrow. About one out of 100 donors experiences damage to a bone, muscle or nerve in the hip area. Read more: Side Effects of Donating Bone Marrow | eHow.com http://www.ehow.com/about_5326346...z1inu9TF27 
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#5
01-07-2012, 12:07 PM
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#6
01-07-2012, 12:07 PM
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Small amount of "damage" is acceptable to save a life...
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#7
01-07-2012, 12:09 PM
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Too fat to join. Time to lose weight.
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#8
01-07-2012, 12:11 PM
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#9
01-07-2012, 12:12 PM
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#10
01-07-2012, 12:13 PM
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Do you get any medical information on yourself when you join? For example, some of your own screenings / marrow types / blood type / etc? I don't see anything on the website that says that.
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#11
01-07-2012, 12:14 PM
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#12
01-07-2012, 12:16 PM
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I'm shocked it used to cost $100 to become a donor.
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#13
01-07-2012, 12:19 PM
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So cool, thanks for posting this. If it wasn't for marrow donors, my dad wouldn't have even had a chance to fight the cancer that was killing him.
He ultimately passed away from complications after his transplant, but due to a donor he did in fact beat the cancer he had. Thanks to all those who are willing to take a chance and put themselves on the list. |
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#14
01-07-2012, 12:21 PM
When I registered the $100 was suggested, not required. |
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#15
01-07-2012, 12:26 PM
A few years after I joined, I was notified that I was a preliminary match, and they wanted to do more testing to see if I was indeed a match. I went in & they took (I think) 6 red tops of blood. If I turned out to be a match, they would let me know that they wanted my marrow, but it never came to that. Oh, and I didn't pay to join. I had no idea anyone ever paid to join. What do all the abbreviations (YMMV, PM, B&M etc) stand for?
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