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Join "Be the Match" for FREE to be a Marrow Donor
January 7, 2012 at
10:03 AM
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This month I decided that I wanted to join "Be the Match" to be entered into the database for bone marrow donors. I knew that it was going to cost $100 in order to offset the cost of the lab costs to test my cells. However, when I went to sign up yesterday it was nice to see that the American Express Foundation has issued a grant to pay for the cost of being registered with "Be the Match" during the month of January.
Simple go to:
www.marrow.org [marrow.org]
DETAILS:
When you join the Be The Match Registry® today, you are joining to help any patient in need of a bone marrow donor. As a volunteer, you are never under any legal obligation to donate and your decision is always respected. However, a late decision not to donate can be life-threatening to a patient, so please think seriously about your commitment before deciding to join.
You can give hope to patients with blood cancers like leukemia and lymphoma, sickle cell and other life-threatening diseases. Patients especially need you if you are between the ages of 18 and 44. That's because younger donors produce more and higher-quality cells than older donors.
The American Express Foundation has provided a grant to cover the costs associated with joining the registry online for the month of January. Service to its customers and to the community has been a hallmark of American Express throughout its 160-year history. As part of its community outreach the American Express Foundation encourages good citizenship by supporting organizations that cultivate meaningful opportunities for civic engagement by its employees and members of the community, whether as volunteers, donors, voters or patrons.
Simple go to:
www.marrow.org [marrow.org]
DETAILS:
When you join the Be The Match Registry® today, you are joining to help any patient in need of a bone marrow donor. As a volunteer, you are never under any legal obligation to donate and your decision is always respected. However, a late decision not to donate can be life-threatening to a patient, so please think seriously about your commitment before deciding to join.
You can give hope to patients with blood cancers like leukemia and lymphoma, sickle cell and other life-threatening diseases. Patients especially need you if you are between the ages of 18 and 44. That's because younger donors produce more and higher-quality cells than older donors.
The American Express Foundation has provided a grant to cover the costs associated with joining the registry online for the month of January. Service to its customers and to the community has been a hallmark of American Express throughout its 160-year history. As part of its community outreach the American Express Foundation encourages good citizenship by supporting organizations that cultivate meaningful opportunities for civic engagement by its employees and members of the community, whether as volunteers, donors, voters or patrons.
Community Wiki
Last Edited by mgm91
January 7, 2012
at
06:40 PM
Please ask questions and do research PRIOR to signing up. The process does have some minimal risks, and depending on the patients needs, could possibly involve some pain in the donation process. The simple truth is, you cannot know what exactly they will need of you because they cannot know ahead of time who you will match and what condition is causing their need for donor marrow. There are people who have been on the marrow donation list for DECADES and have never had a call. You just can't know ahead of time how things are going to work out or what will be needed.
It's better and considerably more charitable to think about this and know exactly what you are signing up for, than to just click and go. It costs a fair amount to process these, but even more important is the patients life and well being.
Marrow donation requires a VERY close match. A patient who gets marrow that doesn't match closely enough can suffer horrendous setbacks, and death is even a very real possibility. To be told there is a good match for you, only to have a donor back out because of fear or having not thought things through is heartbreaking on a level I hope no one ever has to face first hand. I have been there.
Address your concerns please. There is no one working in or with the organ and tissue donation arena that will be anything less than gracious and patient with any questions or worries you have.
I have been involved in kidney donation advocacy for a while now, but decided to join the marrow registry when a friends 4 year old wasted away in under a year from leukemia. The need for marrow donors is even more desperate than the need for blood, because the match has to be much much more exact.
Be the match is VERY good about answering question and giving information and I can also help direct you to info if you need it.
orphicdragon on the forums
[email protected] if you would prefer to email
Donation is one of the coolest things you can do, and if you know what you are getting into and what it involves you won't regret your choice.
Additional message from mgm91:
Hi all. I'm an intern donor recruiter with Be The Match and have experience with answering questions and registering donors. Please feel free to PM me any questions also. Thanks for signing up!
Myths & Facts about Bone Marrow Donation [marrow.org]
Donation FAQs [marrow.org]
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It's better and considerably more charitable to think about this and know exactly what you are signing up for, than to just click and go. It costs a fair amount to process these, but even more important is the patients life and well being.
Marrow donation requires a VERY close match. A patient who gets marrow that doesn't match closely enough can suffer horrendous setbacks, and death is even a very real possibility. To be told there is a good match for you, only to have a donor back out because of fear or having not thought things through is heartbreaking on a level I hope no one ever has to face first hand. I have been there.
Address your concerns please. There is no one working in or with the organ and tissue donation arena that will be anything less than gracious and patient with any questions or worries you have.
I have been involved in kidney donation advocacy for a while now, but decided to join the marrow registry when a friends 4 year old wasted away in under a year from leukemia. The need for marrow donors is even more desperate than the need for blood, because the match has to be much much more exact.
Be the match is VERY good about answering question and giving information and I can also help direct you to info if you need it.
orphicdragon on the forums
[email protected] if you would prefer to email
Donation is one of the coolest things you can do, and if you know what you are getting into and what it involves you won't regret your choice.
Additional message from mgm91:
Hi all. I'm an intern donor recruiter with Be The Match and have experience with answering questions and registering donors. Please feel free to PM me any questions also. Thanks for signing up!
Myths & Facts about Bone Marrow Donation [marrow.org]
Donation FAQs [marrow.org]
This post can be edited by most users to provide up-to-date information about developments of this thread based on user responses, and user findings. Feel free to add, change or remove information shown here as it becomes available. This includes new coupons, rebates, ideas, thread summary, and similar items.
Once a Thread Wiki is added to a thread, "Create Wiki" button will disappear. If you would like to learn more about Thread Wiki feature, click here.
159 Comments
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Ease up.
The only way to correct misinformation and fear is to allow people to safely express them.
My LIFE is devoted to donor advocacy, I am currently on the paired donation list to donate a kidney and am also a blood and plasma donor when I can be.
I spend a large chunk of my life discussing donation and I can't BEGIN to tell you some of the absurd things people think and fear. It doesn't take much to overcome them though. Just be patient.
The root problem here is not the people who are afraid, but the system as it has very little time, energy and resources to devote to donor advocacy.
Kindness and patience is all it takes to get somebody to face fear about this stuff.
Ease up.
BTW -- To the Op -- TU & Rep's -- thanks for posting.
I am of mixed race and after my brother and sister weren't matches thought I would die. They actually found more than one match for me.
Also- they don't tell the receipient until the donor agrees and has gone through testing etc. So if you are worried about letting someone down if you are called and change your mind- don't be. You can always change your mind and they won't pressure you.
Thank you to everyone who has signed up. You can literally save someone's life.
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I would have signed up, but travel restrictions exist. They have consistently turned me away for blood donation for years, so this is something I cannot sign up.
Ratcracker, you are awesome. Repped for awesomeness!
I note the concept of a deal: think of the fact that your blood cells saved some one from certain death. What is the price of human life? That would be the greatest SD of all time, IMHO.
Filgrastim: yes, yes, and yes. All the effects are mentioned. Please note how often those happen. It is a concern, but not enough of a risk to dissuade me from advocating this.
Read this:
Br J Haematol. 2007 April; 137(1): 76–80. Long-term safety of filgrastim (rhG-CSF) administration
Dennis L Confer and John P Miller. The low occurrence of leukaemia and lymphoma in our cohort of volunteer, unrelated PBSC donors should provide reassurance to individuals who receive filgrastim for PBSC mobilisation and should encourage their participation in carefully designed programmes for follow-up monitoring. As data from these and other studies mature, a more complete assessment of overall donor safety will become available to all interested parties.
ARDS is rare, but a concern none the less. Please read more and decide. For me, it is an acceptable risk.
I signed up years ago. I didn't pay anything.
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