Slickdeals is community-supported.  We may get paid by brands for deals, including promoted items.
Popular

Join "Be the Match" for FREE to be a Marrow Donor

8 88 January 7, 2012 at 10:03 AM in Other (2)
Deal
Score
+99
21,863 Views

Deal Details

+99 Deal Score
21,863 Views
This month I decided that I wanted to join "Be the Match" to be entered into the database for bone marrow donors. I knew that it was going to cost $100 in order to offset the cost of the lab costs to test my cells. However, when I went to sign up yesterday it was nice to see that the American Express Foundation has issued a grant to pay for the cost of being registered with "Be the Match" during the month of January.

Simple go to:

www.marrow.org [marrow.org]

DETAILS:
When you join the Be The Match Registry® today, you are joining to help any patient in need of a bone marrow donor. As a volunteer, you are never under any legal obligation to donate and your decision is always respected. However, a late decision not to donate can be life-threatening to a patient, so please think seriously about your commitment before deciding to join.

You can give hope to patients with blood cancers like leukemia and lymphoma, sickle cell and other life-threatening diseases. Patients especially need you if you are between the ages of 18 and 44. That's because younger donors produce more and higher-quality cells than older donors.

The American Express Foundation has provided a grant to cover the costs associated with joining the registry online for the month of January. Service to its customers and to the community has been a hallmark of American Express throughout its 160-year history. As part of its community outreach the American Express Foundation encourages good citizenship by supporting organizations that cultivate meaningful opportunities for civic engagement by its employees and members of the community, whether as volunteers, donors, voters or patrons.

Community Wiki

Last Edited by mgm91 January 7, 2012 at 06:40 PM
Please ask questions and do research PRIOR to signing up. The process does have some minimal risks, and depending on the patients needs, could possibly involve some pain in the donation process. The simple truth is, you cannot know what exactly they will need of you because they cannot know ahead of time who you will match and what condition is causing their need for donor marrow. There are people who have been on the marrow donation list for DECADES and have never had a call. You just can't know ahead of time how things are going to work out or what will be needed.

It's better and considerably more charitable to think about this and know exactly what you are signing up for, than to just click and go. It costs a fair amount to process these, but even more important is the patients life and well being.

Marrow donation requires a VERY close match. A patient who gets marrow that doesn't match closely enough can suffer horrendous setbacks, and death is even a very real possibility. To be told there is a good match for you, only to have a donor back out because of fear or having not thought things through is heartbreaking on a level I hope no one ever has to face first hand. I have been there.

Address your concerns please. There is no one working in or with the organ and tissue donation arena that will be anything less than gracious and patient with any questions or worries you have.

I have been involved in kidney donation advocacy for a while now, but decided to join the marrow registry when a friends 4 year old wasted away in under a year from leukemia. The need for marrow donors is even more desperate than the need for blood, because the match has to be much much more exact.

Be the match is VERY good about answering question and giving information and I can also help direct you to info if you need it.

orphicdragon on the forums
[email protected] if you would prefer to email

Donation is one of the coolest things you can do, and if you know what you are getting into and what it involves you won't regret your choice.

Additional message from mgm91:
Hi all. I'm an intern donor recruiter with Be The Match and have experience with answering questions and registering donors. Please feel free to PM me any questions also. Thanks for signing up!
Myths & Facts about Bone Marrow Donation [marrow.org]

Donation FAQs [marrow.org]



This post can be edited by most users to provide up-to-date information about developments of this thread based on user responses, and user findings. Feel free to add, change or remove information shown here as it becomes available. This includes new coupons, rebates, ideas, thread summary, and similar items.

Once a Thread Wiki is added to a thread, "Create Wiki" button will disappear. If you would like to learn more about Thread Wiki feature, click here.

159 Comments

Your comment cannot be blank.

Sign up for a Slickdeals account to remove this ad.

Joined Dec 2003
L4: Apprentice
> bubble2 310 Posts
87 Reputation
mttfriend
01-19-2012 at 10:33 AM.
01-19-2012 at 10:33 AM.
Not at all for giving sample of your tissue... though,,,

When we donate bone marrow, you have to go thru a lot of tests and medication,
probably you won't be normal for like a month because of procedure. (Think of getting a procedure for leukemia for yourself.)

Being said above, I believe this is one of the easiest thing we can do
to save other person's life.

I signed up for it!!!!!
Reply
Joined Dec 2008
L10: Grand Master
> bubble2 11,257 Posts
2,131 Reputation
steppedinit
01-19-2012 at 10:38 AM.
01-19-2012 at 10:38 AM.
Quote from Derghk :
They often have free recruitment for the registry on college campuses and at hospitals. Maybe to join the registry online there are higher cost, I can't say, but I joined free at a college campus.
Same here. When I donated blood when the blood mobile came to campus the bone marrow registry people were there and it was all free. Just 4 swabs from the inside of my cheeks.
Reply
Joined Jan 2005
L3: Novice
> bubble2 126 Posts
425 Reputation
x1410
01-19-2012 at 10:38 AM.
01-19-2012 at 10:38 AM.
Text quoted from here (Myths & Facts [marrow.org])

MYTH:
Donating is painful and involves a long recovery.
FACT:
There can be uncomfortable but short-lived side effects of donating PBSC. Due to taking a drug called filgrastim for five days leading up to donation, PBSC donors may have headaches, joint or muscle aches, or fatigue. PBSC donors are typically back to their normal routine in one to two days.


Those donating marrow receive general or regional anesthesia, so they feel no pain during donation. Marrow donors can expect to feel some soreness in their lower back for one to two weeks afterward. Most marrow donors are back to their normal activities in two to seven days.



Quote from crushna :
I heard it hurts a lot while donating the bone marrow...is that truth?
Reply
Joined May 2005
L5: Journeyman
> bubble2 574 Posts
181 Reputation
qrychefan
01-19-2012 at 10:39 AM.
01-19-2012 at 10:39 AM.
Quote from crushna :
I heard it hurts a lot while donating the bone marrow...is that truth?
The booklet that came with the kit explained the two ways of collecting. In the less painful route (PBSC)you have multiple injections to increase young red blood cells(yeah stem cells-but stye REALLY go out of they're way to avoid this term.) You then go through a process like donating platelets. THe machine takes out red blood cells and replaces remaining blood.


The older way is still practiced. the pamphlet says the doctor is the one that requests which way. It is a surgical procedure and the needle is used withdraw from the back of the pelvic bone. soreness in the spot for a few days to several weeks.
Reply
Joined Apr 2008
L10: Grand Master
> bubble2 7,188 Posts
757 Reputation
Millionaire406
01-19-2012 at 10:46 AM.
01-19-2012 at 10:46 AM.
So how do we donate our bone marrow? Is it like blood where they take blood/bone marrow from me with a needle? or do I need to go through surgery have the doctor take out my bones and give it to the patient? Does it hurt? Will I regrow my bone marrow like blood? Is bone marrow liquid or solid? I want to help people but I need my bones to survive too....
Reply
Joined Oct 2008
L4: Apprentice
> bubble2 439 Posts
110 Reputation
btlist
01-19-2012 at 10:46 AM.
01-19-2012 at 10:46 AM.
Quote from Derghk :
They often have free recruitment for the registry on college campuses and at hospitals. Maybe to join the registry online there are higher cost, I can't say, but I joined free at a college campus.
You might not have paid, but somebody probably paid on your behalf. I joined the registry at a benefit for a friend of a coworker, but the family had fundraised to pay for all those signing up that day. Plus, the family was wealthy to begin with.
Reply
Joined Oct 2010
L2: Beginner
> bubble2 25 Posts
14 Reputation
samson99
01-19-2012 at 10:47 AM.
01-19-2012 at 10:47 AM.
It is strange to me that they are charging. I signed up for free a year ago, after my girlfriend donated bone marrow. A year later, I received a call, went through testing, more testing, and I was a match at well.

Opposite of my girlfriend, the recipient's doctor requested that I donate stem cells, which is a much different process. If anyone has questions, I can answer them, whether it's a bone marrow or stem cell donation.

Most people will never be called, so it was pretty wild that my girlfriend and I both donated about a year apart!
Reply

Sign up for a Slickdeals account to remove this ad.

Joined Oct 2008
L4: Apprentice
> bubble2 439 Posts
110 Reputation
btlist
01-19-2012 at 10:48 AM.
01-19-2012 at 10:48 AM.
Quote from crushna :
I heard it hurts a lot while donating the bone marrow...is that truth?
I'm sure it's no walk in the park, but knowing I saved somebody's life... that would make it worth it in my book
Reply
Joined Oct 2011
L5: Journeyman
> bubble2 674 Posts
69 Reputation
ChrisS1081
01-19-2012 at 10:49 AM.
01-19-2012 at 10:49 AM.
I had no idea they charge you to see if your a match to donate. I just always figured when donating anything it was free or you go compensated in some way.
Reply
Joined Oct 2004
L5: Journeyman
> bubble2 620 Posts
330 Reputation
BlackMountain123
01-19-2012 at 10:49 AM.
01-19-2012 at 10:49 AM.
I signed up.
Reply
Joined Jun 2011
Cheap Skate
> bubble2 150 Posts
38 Reputation
liquidice281
01-19-2012 at 10:50 AM.
01-19-2012 at 10:50 AM.
So they get your marrow for free and sell it to sick people for $1000/gram? Is that about right?
Reply
Joined Oct 2007
L7: Teacher
> bubble2 2,656 Posts
803 Reputation
langjie
01-19-2012 at 10:50 AM.
01-19-2012 at 10:50 AM.
how does this cost money in the first place?
Reply
Joined Dec 2010
L3: Novice
> bubble2 127 Posts
135 Reputation
mbsimonds
01-19-2012 at 10:51 AM.
01-19-2012 at 10:51 AM.
Completed and shared on facebook. I have an 8yr old with cancer. This is a no brainer for me.
Reply
Joined Nov 2008
L6: Expert
> bubble2 1,113 Posts
239 Reputation
mgftp
01-19-2012 at 10:52 AM.
01-19-2012 at 10:52 AM.
Why are there so many different sites for this?

I am registered on another. Do they all use the same database? Seems like they should all combine for efficiency.
Reply

Sign up for a Slickdeals account to remove this ad.

Joined Nov 2006
L99: SDphiliac
> bubble2 6,401 Posts
2,946 Reputation
eryeal
01-19-2012 at 10:52 AM.
Reply
Page 8 of 11
Start the Conversation
 

More Other Deals & Discounts

Link Copied

The link has been copied to the clipboard.