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Join "Be the Match" for FREE to be a Marrow Donor

8 88 January 7, 2012 at 10:03 AM in Other (2)
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This month I decided that I wanted to join "Be the Match" to be entered into the database for bone marrow donors. I knew that it was going to cost $100 in order to offset the cost of the lab costs to test my cells. However, when I went to sign up yesterday it was nice to see that the American Express Foundation has issued a grant to pay for the cost of being registered with "Be the Match" during the month of January.

Simple go to:

www.marrow.org [marrow.org]

DETAILS:
When you join the Be The Match Registry® today, you are joining to help any patient in need of a bone marrow donor. As a volunteer, you are never under any legal obligation to donate and your decision is always respected. However, a late decision not to donate can be life-threatening to a patient, so please think seriously about your commitment before deciding to join.

You can give hope to patients with blood cancers like leukemia and lymphoma, sickle cell and other life-threatening diseases. Patients especially need you if you are between the ages of 18 and 44. That's because younger donors produce more and higher-quality cells than older donors.

The American Express Foundation has provided a grant to cover the costs associated with joining the registry online for the month of January. Service to its customers and to the community has been a hallmark of American Express throughout its 160-year history. As part of its community outreach the American Express Foundation encourages good citizenship by supporting organizations that cultivate meaningful opportunities for civic engagement by its employees and members of the community, whether as volunteers, donors, voters or patrons.

Community Wiki

Last Edited by mgm91 January 7, 2012 at 06:40 PM
Please ask questions and do research PRIOR to signing up. The process does have some minimal risks, and depending on the patients needs, could possibly involve some pain in the donation process. The simple truth is, you cannot know what exactly they will need of you because they cannot know ahead of time who you will match and what condition is causing their need for donor marrow. There are people who have been on the marrow donation list for DECADES and have never had a call. You just can't know ahead of time how things are going to work out or what will be needed.

It's better and considerably more charitable to think about this and know exactly what you are signing up for, than to just click and go. It costs a fair amount to process these, but even more important is the patients life and well being.

Marrow donation requires a VERY close match. A patient who gets marrow that doesn't match closely enough can suffer horrendous setbacks, and death is even a very real possibility. To be told there is a good match for you, only to have a donor back out because of fear or having not thought things through is heartbreaking on a level I hope no one ever has to face first hand. I have been there.

Address your concerns please. There is no one working in or with the organ and tissue donation arena that will be anything less than gracious and patient with any questions or worries you have.

I have been involved in kidney donation advocacy for a while now, but decided to join the marrow registry when a friends 4 year old wasted away in under a year from leukemia. The need for marrow donors is even more desperate than the need for blood, because the match has to be much much more exact.

Be the match is VERY good about answering question and giving information and I can also help direct you to info if you need it.

orphicdragon on the forums
[email protected] if you would prefer to email

Donation is one of the coolest things you can do, and if you know what you are getting into and what it involves you won't regret your choice.

Additional message from mgm91:
Hi all. I'm an intern donor recruiter with Be The Match and have experience with answering questions and registering donors. Please feel free to PM me any questions also. Thanks for signing up!
Myths & Facts about Bone Marrow Donation [marrow.org]

Donation FAQs [marrow.org]



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Joined Feb 2011
L2: Beginner
> bubble2 86 Posts
59 Reputation
Jackal139
01-07-2012 at 12:58 PM.
01-07-2012 at 12:58 PM.
I am a member and just donated recently Smilie
Reply
Joined Dec 2010
L1: Learner
> bubble2 13 Posts
15 Reputation
sacotten
01-07-2012 at 12:59 PM.
01-07-2012 at 12:59 PM.
I have been a member for a few years now and it was free to sign up... I even got pizza and free cups. Slicker deal Wink

This is a great cause, I hope anyone questioning joining reads more on the process, contacts the company, or asks here for information. Everyone should join!
Reply
Joined Aug 2007
L6: Expert
> bubble2 1,683 Posts
206 Reputation
SimMike777
01-07-2012 at 01:08 PM.
01-07-2012 at 01:08 PM.
I got a card when I was donating blood. Went online and ordered the match kit. Never paid one penny, let alone $100.
Reply
Joined Sep 2010
L1: Learner
> bubble2 8 Posts
88 Reputation
Original Poster
bigbugs2000
01-07-2012 at 01:13 PM.
01-07-2012 at 01:13 PM.
Quote from SimMike777 :
I got a card when I was donating blood. Went online and ordered the match kit. Never paid one penny, let alone $100.
It isn't always covered.

Q: Why is there sometimes a cost associated with joining the registry? A: The total cost to add a new member to the Be The Match Registry is about $100. This includes the cost of the testing needed to match donors to searching patients and related costs.

Be The Match relies on financial contributions to help cover the costs of adding members to the registry. Others have contributed toward the costs for you to join today. However, there are not always enough funds to cover the numbers of donors needed, so sometimes new members are asked to pay some of the registration costs when they join.

Your contribution will make it possible for more people like you to join in the future. Every gift helps make life-saving transplants a reality for more patients —contribute now.
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Joined Aug 2011
L9: Master
> bubble2 5,726 Posts
3,843 Reputation
contraium
01-07-2012 at 01:14 PM.
01-07-2012 at 01:14 PM.
Joined years ago when a family friend had a child with cancer. Unfortunately the child was never matched. Thanks for posting Op.
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Joined May 2010
Mmm... D-lish
> bubble2 165 Posts
389 Reputation
RatCracker
01-07-2012 at 01:15 PM.
01-07-2012 at 01:15 PM.
I donated bone marrow to a wonderful lady in Germany, 14 years ago. We didn't know each other before the donation... I was able to meet her a few years later. So friggen awesome!!! (We were both in our late 20s.) She is still alive, married, and a step-mommy, now, because of her transplant.

The marrow was extracted from my Iliac Crest, through 6 different small "holes" in my lower back. (Three on each side.) I won't lie. The recovery was long and, at times, very achy (about 17 days). However, I'd do it again in a heartbeat. What the donor goes through is NOTHING compared to what the recipient experiences... chemo, radiation, all the side-effects, and facing life or death everyday... Donating is a piece of cake!

My first husband died of cancer. It was crushing - so defeating. So, when the call came in to donate, I knew I had to do so in hopes another patient might have a chance at life. Smilie
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Joined Aug 2011
L1: Learner
> bubble2 4 Posts
10 Reputation
lindealhunter
01-07-2012 at 01:21 PM.
01-07-2012 at 01:21 PM.
Thanks for posting this. My mom died from leukemia when I was 11 and I have always talked about wanting to donate to help someone and also prevent their family from going through the sadness that I experience every day. My kit is on it's way!!
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Joined Feb 2007
L5: Journeyman
> bubble2 686 Posts
276 Reputation
kbabe
01-07-2012 at 01:27 PM.
01-07-2012 at 01:27 PM.
I joined a few months ago. It took a couple of months from the time I got the kit to the time they said "I was in". I'm just waiting for them to send my card now. Such an easy way to give back. I can't imagine what it's like to be one of the families struggling with needing a match. I hope I can help someone someday with my marrow!!!
Reply
Joined Dec 2008
Appreciative SDer..
> bubble2 185 Posts
42 Reputation
karanpp
01-07-2012 at 01:27 PM.
01-07-2012 at 01:27 PM.
Thanks bigbugs2000 for posting! I'm a want to donate reject due to my health. Good to know American Express Foundation is supporting this as well as the OP effort to help promote a very worthy cause. Saving a life is important!
Reply
Joined Jun 2007
slacker
> bubble2 944 Posts
936 Reputation
slackerace
01-07-2012 at 01:29 PM.
01-07-2012 at 01:29 PM.
I joined while living in New Haven 2 years ago. One of the Yale women's hockey players needed a bone marrow transplant. Unfortunately, after a long battle, she died. I think EVERYONE should be a donor!
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Joined Dec 2008
Appreciative SDer..
> bubble2 185 Posts
42 Reputation
karanpp
01-07-2012 at 01:30 PM.
01-07-2012 at 01:30 PM.
also want to commend moongazebo! Hope your nephew is doing well.
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Joined Feb 2006
BEERNET
> bubble2 2,489 Posts
1,574 Reputation
xtwister161
01-07-2012 at 01:30 PM.
01-07-2012 at 01:30 PM.
in 4 1.
Reply
Joined Dec 2008
Appreciative SDer..
> bubble2 185 Posts
42 Reputation
karanpp
01-07-2012 at 01:34 PM.
01-07-2012 at 01:34 PM.
Thanks also to RatCracker for relating experience as a donor. Sorry for multiple posts, but excited to see this effort revived again on SD. Wish I'd been accepted to help another.
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Joined Sep 2011
L2: Beginner
> bubble2 27 Posts
14 Reputation
RuncibleSpoon
01-07-2012 at 01:39 PM.
01-07-2012 at 01:39 PM.
Disqualified from registering on a couple of their medical guidelines, but still giving TU and rep for sharing something that could save multiple lives!
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Joined Nov 2008
L3: Novice
> bubble2 111 Posts
222 Reputation
BrokeCuzOfSD
01-07-2012 at 02:07 PM.
01-07-2012 at 02:07 PM.
Quote from alchemista :
Do you get any medical information on yourself when you join? For example, some of your own screenings / marrow types / blood type / etc? I don't see anything on the website that says that.
Did the kit at an event. I was given my member card and was told I can find out some of my medical info (I remember it was at least blood type) after a month or so if I call the local headquarters. Keep forgetting to do so. It's been a couple of years :x

Quote from Inpact :
I already donated bone marrow once (to my brother), can I donate again?
I recall reading on the website that says there's no limit on the number of times you can donate. Only limit is your health, I believe.
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Last edited by BrokeCuzOfSD January 7, 2012 at 02:10 PM.
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