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Join "Be the Match" for FREE to be a Marrow Donor

8 88 January 7, 2012 at 10:03 AM in Other (2)
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This month I decided that I wanted to join "Be the Match" to be entered into the database for bone marrow donors. I knew that it was going to cost $100 in order to offset the cost of the lab costs to test my cells. However, when I went to sign up yesterday it was nice to see that the American Express Foundation has issued a grant to pay for the cost of being registered with "Be the Match" during the month of January.

Simple go to:

www.marrow.org [marrow.org]

DETAILS:
When you join the Be The Match Registry® today, you are joining to help any patient in need of a bone marrow donor. As a volunteer, you are never under any legal obligation to donate and your decision is always respected. However, a late decision not to donate can be life-threatening to a patient, so please think seriously about your commitment before deciding to join.

You can give hope to patients with blood cancers like leukemia and lymphoma, sickle cell and other life-threatening diseases. Patients especially need you if you are between the ages of 18 and 44. That's because younger donors produce more and higher-quality cells than older donors.

The American Express Foundation has provided a grant to cover the costs associated with joining the registry online for the month of January. Service to its customers and to the community has been a hallmark of American Express throughout its 160-year history. As part of its community outreach the American Express Foundation encourages good citizenship by supporting organizations that cultivate meaningful opportunities for civic engagement by its employees and members of the community, whether as volunteers, donors, voters or patrons.

Community Wiki

Last Edited by mgm91 January 7, 2012 at 06:40 PM
Please ask questions and do research PRIOR to signing up. The process does have some minimal risks, and depending on the patients needs, could possibly involve some pain in the donation process. The simple truth is, you cannot know what exactly they will need of you because they cannot know ahead of time who you will match and what condition is causing their need for donor marrow. There are people who have been on the marrow donation list for DECADES and have never had a call. You just can't know ahead of time how things are going to work out or what will be needed.

It's better and considerably more charitable to think about this and know exactly what you are signing up for, than to just click and go. It costs a fair amount to process these, but even more important is the patients life and well being.

Marrow donation requires a VERY close match. A patient who gets marrow that doesn't match closely enough can suffer horrendous setbacks, and death is even a very real possibility. To be told there is a good match for you, only to have a donor back out because of fear or having not thought things through is heartbreaking on a level I hope no one ever has to face first hand. I have been there.

Address your concerns please. There is no one working in or with the organ and tissue donation arena that will be anything less than gracious and patient with any questions or worries you have.

I have been involved in kidney donation advocacy for a while now, but decided to join the marrow registry when a friends 4 year old wasted away in under a year from leukemia. The need for marrow donors is even more desperate than the need for blood, because the match has to be much much more exact.

Be the match is VERY good about answering question and giving information and I can also help direct you to info if you need it.

orphicdragon on the forums
[email protected] if you would prefer to email

Donation is one of the coolest things you can do, and if you know what you are getting into and what it involves you won't regret your choice.

Additional message from mgm91:
Hi all. I'm an intern donor recruiter with Be The Match and have experience with answering questions and registering donors. Please feel free to PM me any questions also. Thanks for signing up!
Myths & Facts about Bone Marrow Donation [marrow.org]

Donation FAQs [marrow.org]



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Joined Jan 2005
LXIX:Master of a Universe
> bubble2 1,536 Posts
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UFOCIA
01-07-2012 at 08:47 PM.
01-07-2012 at 08:47 PM.
Quote from meggs :
Long-Term Effects
Long-term side effects are rare but possible when donating bone marrow. About one out of 100 donors experiences damage to a bone, muscle or nerve in the hip area.

Unsure
I'm not sure that a 1% risk in the medical area classifies as rare.
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Last edited by UFOCIA January 7, 2012 at 08:54 PM.
Joined Dec 2007
L3: Novice
> bubble2 208 Posts
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r_rmommy
01-07-2012 at 10:47 PM.
01-07-2012 at 10:47 PM.
I wanted to register but was denied because of my chronic back pain Frown Thank you for the opportunity and God bless everyone who signed up!
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Joined Dec 2003
Underwater Basket-Weaver
> bubble2 118 Posts
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cdarbro
01-07-2012 at 11:46 PM.
01-07-2012 at 11:46 PM.
Quote from farmeronthedell :
Jerk have a heart I hope you never need bone marrow
Take it elsewhere. He has every right to point out the truth, this is a deals forum, and this is not a "deal" and a Mod/Op needs to move it where appropriate. The "Hot deals" forum is NOT the place for this discussion and it's provocative subject matter.

And before you go crying or trolling, Im not against donation, I've actually been a donor and on the list for quite a long time. Nor am I against the discussion. But this is definitely not the place for it, which is also backed by the rules/guidelines for this forum that ALL topics are to adhere to.

In addition, for the person(s) dismissing the validity of the possibility of donation complications/ailments/and methods of taking from the hip, etc, let me assure you, as someone who was just contacted to come in for donation as recent as 2 weeks ago, who had discussions with bethematch as well as doctors, it's a VERY real possibility. While using blood IS the more popular/common route, taking marrow from the hip still happens, and is more likely the younger the patient is, especially for children patients. While I chose to go ahead, I can understand those who wouldnt or would be skeptical. Looking out for yourself or having worries doesnt make you a bad person as other posts would try to lead you to believe, for solely being concerned and not thoughtlessly immediately being selfless.
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Joined Nov 2011
L3: Novice
> bubble2 277 Posts
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farmeronthedell
01-08-2012 at 01:13 AM.
01-08-2012 at 01:13 AM.
Quote from cdarbro :
Take it elsewhere. He has every right to point out the truth, this is a deals forum, and this is not a "deal" and a Mod/Op needs to move it where appropriate. The "Hot deals" forum is NOT the place for this discussion and it's provocative subject matter.

And before you go crying or trolling, Im not against donation, I've actually been a donor and on the list for quite a long time. Nor am I against the discussion. But this is definitely not the place for it, which is also backed by the rules/guidelines for this forum that ALL topics are to adhere to.

In addition, for the person(s) dismissing the validity of the possibility of donation complications/ailments/and methods of taking from the hip, etc, let me assure you, as someone who was just contacted to come in for donation as recent as 2 weeks ago, who had discussions with bethematch as well as doctors, it's a VERY real possibility. While using blood IS the more popular/common route, taking marrow from the hip still happens, and is more likely the younger the patient is, especially for children patients. While I chose to go ahead, I can understand those who wouldnt or would be skeptical. Looking out for yourself or having worries doesnt make you a bad person as other posts would try to lead you to believe, for solely being concerned and not thoughtlessly immediately being selfless.
This is a deal, otherwise this would cost money to add yourself, therefore making this a deal.
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Joined Jan 2009
Hee-ho!
> bubble2 1,669 Posts
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durpy
01-08-2012 at 02:14 AM.
01-08-2012 at 02:14 AM.
i was considering joining but apparently my asthma is too severe.
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Joined Dec 2003
Underwater Basket-Weaver
> bubble2 118 Posts
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cdarbro
01-08-2012 at 02:39 AM.
01-08-2012 at 02:39 AM.
Quote from farmeronthedell :
This is a deal, otherwise this would cost money to add yourself, therefore making this a deal.
...and that was the other thing. Maybe some 3rd party site was charging people, but BeTheMatch has never charged anyone that i know of in the past 10 years. There's always some level of 'we usually charge for this' or 'we would like a donation if you could spare it' or 'this is being sponsored by (business partner of the week who donated some money for tax purposes but not neccessarily for covering any costs for users)', etc. Which is fair, they're trying to get donations to have more money for marketing, spreading the word, etc. But simply, they've never forced anyone to pay who's willing to sign up and commit to being a donor for any potential candidate, despite what rubbish you picked up elsewhere.

It's not a deal.
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Joined Jul 2008
L3: Novice
> bubble2 182 Posts
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mapheew
01-08-2012 at 02:49 AM.
01-08-2012 at 02:49 AM.
I registered to help others in 2000, and later found out i had Leukemia in 2007.

MY LIFE WAS SAVED by a stranger who donated their marrow to me after they registered to be a donor.

READ, LEARN, SIGN UP, and STAY COMMITTED. Cancer sucks and is blind, it can happen to ANYONE.

In the search of find my matching marrow donor, my friends and family registered over 15,000 people and hope we helped someone else in need. YOU can make a difference as well.

www.teammatthew.org/blogs
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Joined Nov 2011
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farmeronthedell
01-08-2012 at 02:53 AM.
01-08-2012 at 02:53 AM.
Quote from cdarbro :
...and that was the other thing. Maybe some 3rd party site was charging people, but BeTheMatch has never charged anyone that i know of in the past 10 years. There's always some level of 'we usually charge for this' or 'we would like a donation if you could spare it' or 'this is being sponsored by (business partner of the week who donated some money for tax purposes but not neccessarily for covering any costs for users)', etc. Which is fair, they're trying to get donations to have more money for marketing, spreading the word, etc. But simply, they've never forced anyone to pay who's willing to sign up and commit to being a donor for any potential candidate, despite what rubbish you picked up elsewhere.

It's not a deal.
I'm not going to go back and fourth with you, because quite honestly I don't care about what you have to say. Thanks OP for bringing this to slickdeals and hopefully signing up some people who can really make a difference and save some lives.
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Joined Dec 2003
Underwater Basket-Weaver
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cdarbro
01-08-2012 at 02:59 AM.
01-08-2012 at 02:59 AM.
Quote from farmeronthedell :
I'm not going to go back and fourth with you, because quite honestly I don't care about what you have to say. Thanks OP for bringing this to slickdeals and hopefully signing up some people who can really make a difference and save some lives.
Apparently you ARE going to go back and *forth* with me, otherwise you wouldn't have responded. If not, I'll go ahead and have the last word here, there was never any issue with the OP 'bringing this to slickdeals' and getting people to sign up. So ease up there, Prince Charming. If you'd like to go back and read again, the issue was with the topic being placed in the "Hot Deals" forum, instead of General Discussion, or, if you really want to justify keeping it 'deal' related, the FREEBIES section. There are rules and guidelines to this forum, if you can't follow them and help keep things properly sorted, well, no one's asking you to be here, either.
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Joined Oct 2008
L6: Expert
> bubble2 1,876 Posts
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eggsalad
01-08-2012 at 03:11 AM.
01-08-2012 at 03:11 AM.
Quote from danchay :
This makes me wish there was a way to give negative feedback. At least do real research on modern medicine before posting something as ignorant as this. You have a better chance of being seriously injured choking on a cup of water than being seriously injured donating marrow.
laugh out loud You Mad? laugh out loud
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Joined Nov 2011
L3: Novice
> bubble2 277 Posts
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farmeronthedell
01-08-2012 at 03:11 AM.
01-08-2012 at 03:11 AM.
Quote from cdarbro :
Apparently you ARE going to go back and *forth* with me, otherwise you wouldn't have responded. If not, I'll go ahead and have the last word here, there was never any issue with the OP 'bringing this to slickdeals' and getting people to sign up. So ease up there, Prince Charming. If you'd like to go back and read again, the issue was with the topic being placed in the "Hot Deals" forum, instead of General Discussion, or, if you really want to justify keeping it 'deal' related, the FREEBIES section. There are rules and guidelines to this forum, if you can't follow them and help keep things properly sorted, well, no one's asking you to be here, either.
I first found this post in the FREEBIES section as I remember correctly.
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Joined Jul 2006
L4: Apprentice
> bubble2 372 Posts
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Trazobone
01-08-2012 at 03:46 AM.
01-08-2012 at 03:46 AM.
Thanks for posting this OP. I have a friend of mine who recently relapsed and is in need of a match. For anyone interested, here is her facebook page devoted to getting her a match: https://www.facebook.com/helpingjanet
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Joined Aug 2011
L3: Novice
> bubble2 214 Posts
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oliverquack
01-08-2012 at 04:10 AM.
01-08-2012 at 04:10 AM.
Quote from cdarbro :
Apparently you ARE going to go back and *forth* with me, otherwise you wouldn't have responded. If not, I'll go ahead and have the last word here, there was never any issue with the OP 'bringing this to slickdeals' and getting people to sign up. So ease up there, Prince Charming. If you'd like to go back and read again, the issue was with the topic being placed in the "Hot Deals" forum, instead of General Discussion, or, if you really want to justify keeping it 'deal' related, the FREEBIES section. There are rules and guidelines to this forum, if you can't follow them and help keep things properly sorted, well, no one's asking you to be here, either.
mr FATHED it is a deal. i GIVE my time. i GET feelings of happiness and self esteem. just cos u on the list dont make u the authority of donation deal qualifications dam man ur words r strictly for the birds.
deals dont have to always involve procurement of physical tangiable goods. nor do deals need to involve handing money to someone. havent u ever heard time is money. deals usually involve obtaining physical property, but that is just means to the end, the end being happiness and satisfaction. well here we bypass the means and get right to the ends and get satisfaction right off the bat knowing ur doing good in the world. for petes sake.
and to the guy who google stuff and decides what gets more hits is the more important thing, he should google his momma name and also "street corner". I bet there will be some hits since google never say it cant find any results. what does that tell us? haha gegegeege
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Joined May 2007
Olympic Bargain Hunter
> bubble2 1,194 Posts
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moongazebo
01-08-2012 at 04:37 AM.
01-08-2012 at 04:37 AM.
Quote from farmeronthedell :
I first found this post in the FREEBIES section as I remember correctly.

When we started searching for my nephew's donor, we started a thread in the FREEBIES section - here it is:

https://slickdeals.net/f/3139352-Free-bone-marrow-test-kit-Chance-to-save-life-of-boy-in-video-or-someone-else-s-life?v=1
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Joined Mar 2007
Support global warming!
> bubble2 356 Posts
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Scotso
01-08-2012 at 05:10 AM.
01-08-2012 at 05:10 AM.
I'm sad to see they discriminate against gay men. I guess that's more important to them than saving a life.
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