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The Celiac discussion thread....no wheat allowed!!

17,745 1,470 February 4, 2009 at 08:46 PM in Sad
Celiac....I haz it!

Ranting

This sucks really freaking bad.




Anyone else in the same boat? I literally found out an hour ago...have lots of researching to do.



Crying2
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Joined Mar 2005
I run SD Secret Santa
> bubble2 16,570 Posts
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w3kn
02-05-2009 at 03:59 AM.
02-05-2009 at 03:59 AM.
Good luck SC.

And where is Briang to chime in about gluten free beer? Whip
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Joined Aug 2003
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> bubble2 22,811 Posts
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briang
02-05-2009 at 04:06 AM.
02-05-2009 at 04:06 AM.
*I* have never had gluten free beer, but they use sorghum (I think). It's probably a fairly safe bet that it's better than bud light, but it may be time to switch to hard liquor or wine hug

I feel your pain Frown
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Joined Jul 2005
Scarydevil Monastery
> bubble2 26,675 Posts
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veritablequandary
02-05-2009 at 05:06 AM.
02-05-2009 at 05:06 AM.
Whole Foods has tons of gluten-free selections. Bigger stores might even have an entire section. I think I've seen that label at Trader Joe's, too. And I want to say some of the more hippy-friendly places like Cosi have gluten-free selections...
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Joined Dec 2005
My # is bigger than yours
> bubble2 37,382 Posts
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SnakePlisken
02-05-2009 at 05:11 AM.
02-05-2009 at 05:11 AM.
Quote from veritableqndry :
Whole Foods has tons of gluten-free selections. Bigger stores might even have an entire section. I think I've seen that label at Trader Joe's, too. And I want to say some of the more hippy-friendly places like Cosi have gluten-free selections...
condoms do a better job to stop spreadin that around than eatin
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Joined Nov 2005
A Geek of All Trades
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Dark_Saber
02-05-2009 at 05:13 AM.
02-05-2009 at 05:13 AM.
Man I am sorry to hear that SC. I was wondering if they had thought you had celiac sprue which is temporary and caused by an infection, but if you have been suffering for a year or so then it doesn't really sound like sprue anymore. Again, hope things work out hug
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Joined Sep 2006
IVIodel citizen
> bubble2 19,431 Posts
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Fallacy
02-05-2009 at 06:33 AM.
02-05-2009 at 06:33 AM.
wave Been in the same boat for about 5 years now.
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Joined Apr 2006
Follow Your Heart
> bubble2 9,329 Posts
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*JeanGrey*
02-05-2009 at 06:45 AM.
02-05-2009 at 06:45 AM.
I think it actually can come on in adulthood... a woman in one my classes last semester said she ended up in the hospital, suddenly, and had celiac. Never had any issues before. She's in her late 30's/early 40's.

Substitute for cookies: http://www.recipezaar.com/Natural...ars-163297
You can make no-bake peanut butter bars, with raw peanut butter, chocolate chips and oats (as long as oats don't give you problems either). Oh, and some honey, or perhaps some agave nectar or maple syrup or just plain ol' sugar if you so desire. My friend put in dried cranberries, and protein powder.... I swear it was one the best damn things I have ever tasted in my life!! You can think of tons of variations of this recipe and it will surely help with dessert cravings!! There are also flourless chocolate cakes, things of that nature. hug
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Joined Nov 2005
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Dark_Saber
02-05-2009 at 07:18 AM.
02-05-2009 at 07:18 AM.
Quote from *JeanGrey* :
I think it actually can come on in adulthood... a woman in one my classes last semester said she ended up in the hospital, suddenly, and had celiac. Never had any issues before. She's in her late 30's/early 40's.
Auto-immunity can manifest itself at any time, most times there is a hereditary component though.
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Joined Jan 2008
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zexplorers
02-06-2009 at 07:56 PM.
02-06-2009 at 07:56 PM.
Hi, I just stumbled on your post looking for deals on GF food. I've been GF for 9 years and it's so much easier now than it was then. I used to buy beer and have it shipped from a microbrew in NY because I could not find any locally. Now I can find 3-4 GF beers locally. Pizzeria Uno just went national with a GF pizza. Trader Joes's has a lot of GF products and of course Whole Foods does as well. There are lots of prepackaged cookies and mixes that are easy to make. Glutino and Kinnickinick make decent bagels and some Whole Foods carry an entire line of GF baked goods. My DD has celiac as well so I bake quite a bit so she has cupcakes for parties etc. Costco carries a chocolate cake mix with a killer frosting. My SIL makes yummy little cheesecakes for my brother ( also celiac) using Midel or Trader Joes Ginger Snaps as a base. Take some time and scope out what you are looking for. Trust me my family does not go hungry Smilie
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Joined Dec 2004
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Schooby
02-06-2009 at 08:18 PM.
02-06-2009 at 08:18 PM.
No helpful info, but hug
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Joined Nov 2005
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Original Poster
SlickChik
02-06-2009 at 09:17 PM.
02-06-2009 at 09:17 PM.
Quote from zexplorers :
Hi, I just stumbled on your post looking for deals on GF food. I've been GF for 9 years and it's so much easier now than it was then. I used to buy beer and have it shipped from a microbrew in NY because I could not find any locally. Now I can find 3-4 GF beers locally. Pizzeria Uno just went national with a GF pizza. Trader Joes's has a lot of GF products and of course Whole Foods does as well. There are lots of prepackaged cookies and mixes that are easy to make. Glutino and Kinnickinick make decent bagels and some Whole Foods carry an entire line of GF baked goods. My DD has celiac as well so I bake quite a bit so she has cupcakes for parties etc. Costco carries a chocolate cake mix with a killer frosting. My SIL makes yummy little cheesecakes for my brother ( also celiac) using Midel or Trader Joes Ginger Snaps as a base. Take some time and scope out what you are looking for. Trust me my family does not go hungry Smilie
I think one of my biggest concerns is the cost....everything is so expensive!!! I work 3 different places so I always eat on the road...I'm not sure what to do now other than starve. I've never made anything from scratch in my life!!


Quote from *JeanGrey* :
I think it actually can come on in adulthood... a woman in one my classes last semester said she ended up in the hospital, suddenly, and had celiac. Never had any issues before. She's in her late 30's/early 40's.

Substitute for cookies: http://www.recipezaar.com/Natural...ars-163297
You can make no-bake peanut butter bars, with raw peanut butter, chocolate chips and oats (as long as oats don't give you problems either). Oh, and some honey, or perhaps some agave nectar or maple syrup or just plain ol' sugar if you so desire. My friend put in dried cranberries, and protein powder.... I swear it was one the best damn things I have ever tasted in my life!! You can think of tons of variations of this recipe and it will surely help with dessert cravings!! There are also flourless chocolate cakes, things of that nature. hug
thanks! hug

Quote from IVIax :
wave Been in the same boat for about 5 years now.
Any secrets???

Quote from Dark_Saber :
Man I am sorry to hear that SC. I was wondering if they had thought you had celiac sprue which is temporary and caused by an infection, but if you have been suffering for a year or so then it doesn't really sound like sprue anymore. Again, hope things work out hug
thanks hug
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Joined Jul 2005
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sassysour
02-06-2009 at 09:26 PM.
02-06-2009 at 09:26 PM.
SlickChik, I think I missed this... how do you know you have Celiac disease? There are 4 intestinal diseases that look the same. Did your test come up positive? Is the Celiac diet the same as the SCD diet? I have some info on the SCD diet if you want. But you have to know for sure thats the issue. Most people would probably benefit from gluten free/SCD diets anyway.

http://www.pecanbread.com/new/home1.html
your doctor probably told you about probiotics....

I think gluten free might even be easier than a strict SCD diet. Do you have a Whole Foods? They have tons and tons of stuff, from brownies to pasta that are gluten free. My daughter just made a gluten free chocolate cake.

It's not easy when you learn something like this. You almost have to grieve, or get mad, to be able to process it. But it will get easier. ((((((((big hug)))))))))))))
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Joined Jul 2005
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sassysour
02-06-2009 at 09:32 PM.
02-06-2009 at 09:32 PM.
http://www.amazon.com/s/qid=12339...%3Agrocery

here is the section at amazon. hope this helps~
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Joined Jun 2007
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smiley333
02-07-2009 at 08:17 AM.
02-07-2009 at 08:17 AM.
Aw! hug I don't have any advice, just showing support. Comfort
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Joined Jan 2008
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zexplorers
02-07-2009 at 05:18 PM.
02-07-2009 at 05:18 PM.
Quote from SlickChik :
I think one of my biggest concerns is the cost....everything is so expensive!!! I work 3 different places so I always eat on the road...I'm not sure what to do now other than starve. I've never made anything from scratch in my life!!
It does not have to be expensive. If you;re using a lot of prepackaged foods then it will be but since there are 3 of us in my family on the GF diet I try really hard to make things cost effective. We use corn tortillas a lot for wraps rather than making or buying GF bread. When we do have bread or bagels it's a treat. A good breadmaker will help if you want to make bread at home. I also use corn cakes ( they are thinner than rice cakes) for peanut butter sandwiches. Trader Joes has GF cereals for the cheapest price, about the same as regular cereal. Rice Chex are GF as are Honey Kix so you can grab those from a regular grocery store. Trader Joes has rice pasta for a good price as well as a GF mac and cheese mix ( $1.99). I use lots of rice and potatoes as a starch and plain grilled chicken, burgers, fish etc and streamed veggies and salad. On the go Wendy's baked potato is GF and I think some of their salads as well. We don't eat out much so I'm not much help there. I did find this list that looks pretty up to date
http://food-allergies.suite101.co...od_options You may want to carry a small cooler with cheese sticks and yogurts until you figure out what you can eat while you're at work.

I agree you have to get angry and grieve, it's part of the process. Heck at times I still get angry, especially for my young kids but I'd rather have them healthy and miss out on some food than get sick

Good luck!.
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